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Una noche de música en la Sala Rey Louie de Majadahonda para apoyar la investigación de una terapia génica para el síndrome de Cockayne tipo B. Quien no pueda ir puede colaborar con la fila cero.
Lo recaudado va a El Camino de Carlota, la campaña de la Asociación Cockayne B España para financiar una terapia génica contra el síndrome de Cockayne tipo B, una enfermedad ultrarrara que tiene Carlota, una niña de cuatro años de Mieres. El objetivo es reunir dos millones de euros para llegar al primer ensayo clínico.
Información práctica:
- Jueves 26 de noviembre de 2026, 21:00 h
- Sala Rey Louie, Av. España, 51, Majadahonda
- Entradas anticipadas con el código QR del cartel
- Fila cero: Bizum 14716
